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FA Global Patient Registry

Join The Registry

Information on Individuals Enrolled in the Registry

   
 

Welcome to the FA Global Patient Registry.

The purpose of the registry is to collect some basic information on individuals with FA. This information will be used to facilitate and expedite clinical trials and get us all closer to treatments for FA. Basically, this is a way for you to get your name and contact information to researchers who will be conducting clinical research trials. Recruitment for clinical trials can often take a long period of time especially for a rare disease like FA. Your participation in this registry could help speed up that process considerably, because your information would be shared with scientists and companies recruiting patients for FA clinical trials in the near future.

This registry is only for individuals diagnosed with Friedreich's ataxia.

Preparing to register: When you register you will be asked about your contact information and about your diagnosis. For example, there are questions about your age of onset and genetic testing for FA. For individuals less than 18 years of age, we request that your parent or guardian provide consent for entrance into the registry.

Information on Registry Participants

Number of Individuals Enrolled in the Patient Registry: 3334




Geographic Information on Individuals in Registry

 CountryPatients 
expand United States1692
expand Brazil480
expand Canada121
expand United Kingdom103
expand Australia101
expand India84
expand Spain81
expand Italy59
expand France56
expand Ireland52
expand Mexico29
expand Sweden28
expand Argentina26
expand Greece26
expand South Africa25
expand Colombia23
expand Germany21
expand New Zealand18
expand Portugal17
expand Turkey17
expand Chile16
expand Pakistan14
expand Belgium13
expand Netherlands13
expand Switzerland13
expand Iran12
expand Romania9
expand Serbia9
expand Venezuela9
expand Lebanon8
expand Norway8
expand Poland8
expand Albania7
expand Austria7
expand Croatia7
expand Morocco6
expand Russia6
expand Slovenia6
expand Bulgaria5
expand Egypt5
expand Norway5
expand SAUDI ARABIA5
expand Cyprus4
expand Denmark4
expand Israel4
expand Bahrain3
expand Bolivia3
expand dominican republic3
expand Ecuador3
expand egypt3
expand Peru3
expand Uruguay 3
expand Algeria2
expand China2
expand Czech republic2
expand Hungary2
expand Jordan2
expand Lithuania2
expand Nepal2
expand Palestine2
expand Qatar2
expand Seychelles2
expand tunisia2
expand Saudi Arabia 1
expand Afghanistan1
expand Armenia1
expand Bosnia and Herzegowina1
expand Bosnia Herzegowina1
expand Ceska republika1
expand Costa Rica1
expand Denmark1
expand Finland1
expand Hong Kong1
expand Indonesia1
expand Iraq 1
expand Israel1
expand Jordan1
expand Kosova1
expand Kosovo1
expand Macedonia1
expand MOROCCO1
expand Mozambique1
expand PANAMA1
expand Paraguay1
expand Roumania1
expand Scotland1
expand Sri Lanka 1
expand sudan1
expand Syria1
expand Ukraine1
expand Yemen1