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FA Global Patient Registry

Join The Registry

Information on Individuals Enrolled in the Registry

   
 

Welcome to the FA Global Patient Registry.

The purpose of the registry is to collect some basic information on individuals with FA. This information will be used to facilitate and expedite clinical trials and get us all closer to treatments for FA. Basically, this is a way for you to get your name and contact information to researchers who will be conducting clinical research trials. Recruitment for clinical trials can often take a long period of time especially for a rare disease like FA. Your participation in this registry could help speed up that process considerably, because your information would be shared with scientists and companies recruiting patients for FA clinical trials in the near future.

This registry is only for individuals diagnosed with Friedreich's ataxia.

Preparing to register: When you register you will be asked about your contact information and about your diagnosis. For example, there are questions about your age of onset and genetic testing for FA. For individuals less than 18 years of age, we request that your parent or guardian provide consent for entrance into the registry.

Information on Registry Participants

Number of Individuals Enrolled in the Patient Registry: 3716




Geographic Information on Individuals in Registry

 CountryPatients 
expand United States1753
expand Brazil515
expand Canada129
expand United Kingdom117
expand Australia107
expand India104
expand Spain97
expand France83
expand Turkey80
expand Italy72
expand Ireland54
expand Mexico39
expand Argentina32
expand Germany32
expand Greece32
expand Sweden31
expand South Africa28
expand Colombia25
expand Netherlands24
expand chile21
expand New Zealand21
expand Portugal21
expand Belgium16
expand Switzerland16
expand Pakistan15
expand Albania12
expand Iran12
expand Serbia11
expand Egypt10
expand Venezuela10
expand Austria9
expand Croatia9
expand Lebanon9
expand Norway9
expand Romania9
expand Poland8
expand Algeria7
expand Denmark6
expand Morocco6
expand Russia6
expand Slovenia6
expand Bulgaria5
expand Cyprus5
expand Norway5
expand SAUDI ARABIA5
expand Ecuador4
expand Israel4
expand PERU4
expand tunisia4
expand Uruguay4
expand Bahrain3
expand Bolivia3
expand China3
expand Czech Republic3
expand dominican republic3
expand Hungary3
expand Egypt2
expand Iraq 2
expand Jordan2
expand Lithuania2
expand Mozambique2
expand Nepal2
expand Palestine2
expand Qatar2
expand Scotland2
expand Seychelles2
expand Sudan2
expand Syria2
expand Yemen2
expand Saudi Arabia 1
expand Afghanistan1
expand Armenia1
expand Bosnia and Herzegowina1
expand Bosnia Herzegowina1
expand Ceska republika1
expand Costa Rica1
expand Cuba1
expand Denmark1
expand Finland1
expand Hong Kong1
expand Indonesia1
expand Isle of Man1
expand Israel1
expand Kosova1
expand Kosovo1
expand libya1
expand Macedonia1
expand MOROCCO1
expand Palastien1
expand PANAMA1
expand Paraguay1
expand Roumania1
expand Sri Lanka 1
expand St Vincent Grenadines1
expand Ukraine1